"It is vital for children and young people to be able to communicate about their pain in order for them to access the best possible support to manage their condition long term," said Professor Wendy Thomson, Inflammatory Arthritis in Children Lead at the NIHR Manchester Musculoskeletal Biomedical Research Unit, UK. "'This Feeling!' uses familiar technology that children and young people are comfortable with, encouraging them to describe the pain type, intensity, location, spread and emotional impact at a given time, by using an interactive manikin, adjustable pain icons, facial expressions, drawing tools and free text description. The app is a simple multidimensional approach to pain management that allows those with JIA to communicate the intricacies of their pain."
Pain is the most common symptom of JIA1, causing distress and negatively impacting on a child's physical, social and emotional wellbeing. It is subjective, making it a challenge to comprehend how much pain someone is in, or the type of pain they are experiencing. This is a greater challenge in children, as they may be yet to develop the verbal communication tools needed to articulate how they feel.
"Despite advances in the diagnosis and treatment of JIA, pain is still poorly managed and this is distressing for both children and their parents. For every individual the feeling is unique, which can be hard to explain effectively, and for children, communication barriers also play a key role," added Professor Thomson.
Young people aged between 5 and 16 were recruited as part of the Childhood Arthritis Prospective Study (CAPS) to compare conventional self-report measures (Visual Analogue Scale and The Faces Pain Scale, revised) with 'This Feeling!'. A cross-sectional design using mixed methods, including semi-structured interviews, were administrated to each young person attending an outpatient clinic.
Results show that 95% of children preferred using the app over the other conventional methods as it was easier and far more interesting to use. Parents praised the app for capturing the complexity of pain in a child friendly way, which other conventional pain measures failed to do.
This study was funded by the NIHR Manchester Musculoskeletal Biomedical Research Unit and Arthritis Research UK.
The European League Against Rheumatism (EULAR) is an umbrella organisation which represents scientific societies, health professional associations and organisations for people with rheumatic diseases throughout Europe.
EULAR aims to promote, stimulate and support the research, prevention, and treatment of rheumatic diseases and the rehabilitation of those it affects.
With 45 scientific member societies, 35 People with Arthritis and Rheumatism in Europe (PARE) organisations, 19 health professionals associations and 21 corporate members, EULAR highlights the importance of combating rheumatic diseases through both medical means and patient care.
EULAR 2015 is set to be the biggest rheumatology event in Europe with around 14,000 scientists, physicians, allied health professionals and related audiences in attendance from more than 120 countries. Over the course of the congress there will be some 300 oral and just under 2,000 poster abstract presentations, more than 150 sessions, 400 lectures, 40 poster tours and 350 invited speakers.