What Do Parents of Children with Cancer Search for Online?

When a child has cancer, what kind of information do parents seek out? Analyzing their online searches to obtain health-related information offers one window into their concerns, and provides insight into how healthcare providers may offer family education and support. Oncology researchers who investigated parents' online Google searches found that, among other things, parents frequently focus on ways to best support their child and on logistical issues, such as directions to medical centers and appropriate pharmacies.

"There's been a lot of research into what people say they want to find online, but little is known about the specific, granular details that parents of cancer patients seek out," said study leader Charles A. Phillips, MD, a pediatric oncologist at Children's Hospital of Philadelphia (CHOP). "To our knowledge, this is the first study of online Google searches by parents of children with cancer."

Phillips and colleagues published a pilot study online today in Pediatric Blood and Cancer.

The study team enrolled 21 parents (17 of them mothers) of children diagnosed with cancer at CHOP in the summer of 2017. The parents consented to share their Google search histories from the time of study enrollment during their child's cancer treatment to a retrospective time point, six months before the child was diagnosed. After enrollment, other members of the research team, who did not know the identities of patients or families, coded searches into categories and further analyzed the findings.

As may have been expected, parents performed health-related searches at over twice the rate performed by the general population--13 percent versus 5 percent of total Google searches. Parents' Google use peaks at about one month after cancer diagnosis. Eighteen percent of health-related searches (about 1,900 out of 11,000) were cancer-specific, and over half of the cancer-specific searches were for cancer support, such as queries for cancer charities and inspirational quotations.

Among the overall health-related searches, 31 percent were for "symptoms, disease and medical information," followed closely by 29 percent for "information about hospital/care sites/pharmacy." Phillips added that healthcare providers, administrators and web designers need to remember the importance of parents' day-to-day logistical concerns, such as traffic and parking directions, or locating pharmacies that carry pediatric formulations of the medicines prescribed for their child.

Another notable finding, said Phillips, was the uptick in symptom searches in the months before a child was actually diagnosed. That accords with his own experience: "Every time I meet with parents for the first time after a diagnosis, they tell me, 'I knew that something wasn't right.'"

Going forward, the study findings could inform family support and education, said Phillips. For example, hospitals might design educational interventions to help parents better navigate the internet for cancer information, and researchers could evaluate such interventions in a randomized trial.

However, he cautioned against overgeneralizing from the current small, single-center study. Next steps in this field would require organizing larger studies, possibly covering a broader variety of cancers, or a larger range of online information sources. He suggested a future paired study to investigate how adolescent patients search for health information, compared to how their parents search.

Charles A Phillips, Alaina Hunt, Mikaela Salvesen‐Quinn, Jorge Guerra, Marilyn M Schapira, L Charles Bailey, Raina M Merchant.
Health-related Google searches performed by parents of pediatric oncology patients.
Pediatric Blood and Cancer, May 9, 2019. doi: 10.1002/pbc.27795.

Most Popular Now

Derby Starts Drive for Safer and more In…

DXC Technology (NYSE: DXC) is collaborating with Royal Derby Hospital, part of the University Hospitals of Derby and Burton NHS Foundation Trust, on an initiative that will better alert doctors...

What the Radiologist should Know about A…

This paper aims to provide a review of the basis for application of AI in radiology, to discuss the immediate ethical and professional impact in radiology, and to consider possible...

The Mobile Game that can Detect Alzheime…

A specially designed mobile phone game can detect people at risk of Alzheimer's - according to new research from the University of East Anglia. Researchers studied gaming data from an...

Hospital Diagnoses Critically Ill Childr…

The Rady Children’s Hospital (San Diego, USA) used Moon, software developed by the Leuven-based (Belgium) company Diploid. Moon is the first software worldwide to use Artificial Intelligence (AI) for the...

AstraZeneca Starts Artificial Intelligen…

AstraZeneca and BenevolentAI began a long-term collaboration to use artificial intelligence (AI) and machine learning for the discovery and development of new treatments for chronic kidney disease (CKD) and idiopathic...

Novartis Presents First-of-its-Kind Algo…

Novartis today announced results from a validation study of the innovative, algorithm-based digital solution MS Progression Discussion Tool, or MSProDiscussTM. The tool aims to support and facilitate a discussion between...

Red Hat Helps Public Health England Use …

Red Hat, Inc. (NYSE: RHT), the world's leading provider of open source solutions, announced that Public Health England (PHE), an executive agency of the Department of Health and Social Care...

Bayer Joins Sensyne Health Consortium Wo…

Sensyne Health plc (LSE: SENS), the British clinical AI technology company, and Bayer, the life sciences company, announce that Bayer has become Sensyne Health's preferred pharmaceutical partner to work together...